Saturday, February 22, 2014


My childhood best friend's younger sister passed away on Thursday. She had Ehlers-Danlos Syndrome, and complications from a surgery to fuse her spine resulted in a coma and eventual death. She was 23.

She was a remarkable young woman––vibrant, brave, funny, sweet, beautiful, and incredibly talented. Her art is powerfully emotional (check out her site here), and the world is a worse place without her. I haven't been close with her since high school, but my memories are treasured nonetheless.  My heart breaks for her family, friends, and all of us who were lucky enough to know her. She was in terrible pain for much of her life, and I hope that she is now free, happy, and at peace.

Her funeral is in Eugene this Monday, and her family suggests donations to the Ehlers-Danlos National Foundation Research Fund in her memory.

Regularly posting will be back once I feel less raw.

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